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Being just their hands? Personal assistance for disabled people as body work

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dc.contributor.authorGarcía-Santesmases Fernández, Andrea
dc.contributor.authorLópez Gómez, Daniel
dc.contributor.authorPié Balaguer, Asun
dc.contributor.orcidhttps://orcid.org/0000-0003-0095-9142
dc.date.accessioned2024-10-25T15:12:05Z
dc.date.available2024-10-25T15:12:05Z
dc.date.issued2023-07-20
dc.descriptionThe registered version of this article, first published in Sociology of Health and Illness, is available online at the publisher's website: Wiley, https://doi.org/10.1111/1467-9566.13567
dc.descriptionLa versión registrada de este artículo, publicado por primera vez en Sociology of Health and Illness, está disponible en línea en el sitio web del editor: Wiley, https://doi.org/10.1111/1467-9566.13567
dc.description.abstractDrawing on the notion of bodywork, we analyse the bodily aspects of personal assistance to expand the dialogue between medical sociology and disability studies. We aim to, firstly, overcome the lack of attention to the bodywork of personal assistant (PAs) in disability studies; secondly, explore the micropolitics of personal assistance and the role of independent living mandates in configuring this bodywork of PAs; and, thirdly, propose a more relational and material approach to the impairment/disability debate. This exploration is based on qualitative semi-structured interviews with 23 PAs conducted in Spain between 2018 and 2020. Our research reveals that PAs’ bodywork implies performing their body as body-absence, such as when they enact body-tool and body-prosthesis figurations, but also as body-presence, for instance, as acting bodies and affected/affecting bodies in specific situations. Through their analysis, we foreground how PAs’ bodywork conveys normative ways of enacting the body and how these body figurations are not only challenged and negotiated but define the actual practice of personal assistance. To conclude, we stress on the theoretical contributions of our study towards both disability studies and medical sociology.en
dc.description.versionversión final
dc.identifier.citationGarcía-Santesmases, A; López, D.; Pié Balaguer, A. “Being just their hands? Personal assistance for disabled people as body work”. Sociology of Health and Illness, 2022
dc.identifier.doihttps://doi.org/10.1111/1467-9566.13567
dc.identifier.issn1467-9566
dc.identifier.urihttps://hdl.handle.net/20.500.14468/24127
dc.journal.issue6
dc.journal.titleSociology of Health and Illness
dc.journal.volume45
dc.language.isoen
dc.page.final1353
dc.page.initial1334
dc.publisherWiley
dc.relation.centerFacultades y escuelas::Facultad de Derecho
dc.relation.departmentTrabajo Social
dc.rightsinfo:eu-repo/semantics/openAccess
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/deed.es
dc.subject56 Ciencias Jurídicas y Derecho
dc.titleBeing just their hands? Personal assistance for disabled people as body worken
dc.typeartículoes
dc.typejournal articleen
dspace.entity.typePublication
relation.isAuthorOfPublication558634b1-9985-4eba-bc59-a8586c3752e1
relation.isAuthorOfPublication.latestForDiscovery558634b1-9985-4eba-bc59-a8586c3752e1
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