Persona:
García-Santesmases Fernández, Andrea

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0000-0002-8234-7782
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García-Santesmases Fernández
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Andrea
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2022 - 20232
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Autor: Pié Balaguer, Asun ×

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Mostrando 1 - 2 de 2
  • Miniatura
    Publicación
    Being just their hands? Personal assistance for disabled people as body work
    (Wiley, 2023-07-20) García-Santesmases Fernández, Andrea; López Gómez, Daniel; Pié Balaguer, Asun; https://orcid.org/0000-0003-0095-9142
    Drawing on the notion of bodywork, we analyse the bodily aspects of personal assistance to expand the dialogue between medical sociology and disability studies. We aim to, firstly, overcome the lack of attention to the bodywork of personal assistant (PAs) in disability studies; secondly, explore the micropolitics of personal assistance and the role of independent living mandates in configuring this bodywork of PAs; and, thirdly, propose a more relational and material approach to the impairment/disability debate. This exploration is based on qualitative semi-structured interviews with 23 PAs conducted in Spain between 2018 and 2020. Our research reveals that PAs’ bodywork implies performing their body as body-absence, such as when they enact body-tool and body-prosthesis figurations, but also as body-presence, for instance, as acting bodies and affected/affecting bodies in specific situations. Through their analysis, we foreground how PAs’ bodywork conveys normative ways of enacting the body and how these body figurations are not only challenged and negotiated but define the actual practice of personal assistance. To conclude, we stress on the theoretical contributions of our study towards both disability studies and medical sociology.
  • Miniatura
    Publicación
    Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia
    (Springer Nature, 2022-07-02) Alegre Agís, Elisa; García-Santesmases Fernández, Andrea; Pié Balaguer, Asun; Martínez Hernáez, Àngel; Bekele, Deborah; Morales Sáez, Nicolás; Serrano Miguel, Mercedes; https://orcid.org/0000-0003-3720-7163
    In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers’ experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of “nested dependencies”, which create social isolation. This produces the conditions of “reactionary care”, practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.